L.I.E. 2001 ganzer film deutsch KOMPLETT Kino
6 years ago
Dr pepper saved me today. It kept my eyes opened as i drove an hour away for my kid to have an endoscopy. My kid whos healthy and doesn't have issues. the one that now chokes every time he drinks anything and sometimes eats food.
My radio played Jason Aldean as I drove through the misty day and cried halfway through my trip. What a lonely world this medical world can be. I feel so loved and yet so alone at the same time.
My thoughts race non stop knowing i have to do this alone. Not in heart but in body. I want my husband. I want my mom. I dont want to be here but I am. I joke with the drs and nursing staff and behind closed doors I shake with terror and fear. I wipe tears away and pretend its just allergies. I wore mascara today because if I wear mascara, i can't cry because people will know. This helps me check my emotions better. I cant really cry because if i really cry, i may never stop.
Shauns may not have a job to go to after today (which doesnt matter because we're moving) because of some selfish asshole whos never had any struggle in his life other than which expensive car to buy and which take out place to order from. They wanted shaun to come in at 3 for an overnight shift. He asked his supervisor before that if he could come in at 8 so he could get the kids to the sitter. the supervisor agreed but the ceo of the company pitched a fit. Yesterdsy shaun went in at 8am for a shift. His start times vary every day. He was told he would more than likely be written up and it was alluded to that he couldnt or would be fired over this. He explained the situation and that his other kids have had 3 different surgeries or procedures since working there and not once has he asked for time off or for any accommodations. This selfish bastard didnt care.
I would never wish this medical life on my worst enemy but i wish this boss could have something simple medical wise happen to knock him down a few notches.
I hate feeling out of control. I hate feeling like i can't breathe. I feel like i cant control whether i cry or not i hate that I cant stop having panic attacks. But what i hate the most is that Axels endoscopy appears to look fine yet we know there is issues and is following the EoE trend. Im tired. I just want to sleep....and give up. I do. Being a mom is hard. Being a medical mom is harder. Doing it by myself is overwhelming on both me and Shaun. This life is hard. One day, when all my kids are grown up, im going to look back at this life and wonder how i made it through. Right now im just going to cry a little more and invert a little more and do my best to be a decent person despite not wanting to be today. Dr. Pepper save my life and it also might save yours.





We got up before 5, took the girls to a sitter, and headed to Denver. We got in and got Blake checked in, and then waited.


This cute little boy stole my heart again. He must have knew my heart needed to hear it, because ever 2 min he would say, "i love you mom" several times in a row. 


Then he professed his undying love to his girlfriend
Then we gave him versed and he got loopy and HILARIOUS!
So, we dont really know what is causing Blake's motility /digestive issues. We thought it might be a flare up with his EoE. To the naked eye, everything looked great! We will have to wait until we get the biopsies back to see what to do and where to go from here.
On the way back I carried blake 95% of the way. It was a mile or so long. It gave me time to think about how grateful I am that he tries. He has chronic fatigue yet he still pushed and tried and did awesome. It was challenging carrying 30 lbs down the trail but I am so grateful to be his mom! I wish things were different, that he could run and jump and play on trails like his friend was. I have to keep remembering this is our new normal. Our new normal will not ever be different, but I have to try...i have to try to do something normal sometimes, even if that means I will be carrying 30 lbs in my arms, on my back, and on my shoulders for an hour or two or three while he sleeps or is too tired to continue on. I feel so humbled by carrying him. It's what the Savior does for us when we stumble and fall and can't continue on. Its such a selfless act of love that may leave our neck and backs sore and hurting, but its done 100% out of love.
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On a side note....holy hotness ♡♡♡♡
At this point I lost it. I sobbed. I didn't know what to do but hug Tayla. She had written every single person a note saying the same thing but with their name in it. This spot wasn't my tender mercy TAYLA was my tender mercy. I don't know how she knew but she did. She knew I needed to read these sweet words and she knew that I needed to "feel" loved. She has such a tremendously big heart and she listens to the Spirit often. The rest of the day didn't go great, but I felt that peace in my heart and it felt easier as I walked in 10 min late to our appointment (the effects of me being late for the volunteers lunch and then needing to drop my kids off with them again for the next appt)
Tayla has a heart of gold. She is much smarter for her age and she is way too mature for her age. She picks up on things so quickly. She asked if she could learn how to hook and unhook Blake and Payzlee's extensions on the gtube. She picked it up in ONE time. I tell all of my sitters to talk to her if they get stuck. I didn't teach her any of the troubleshooting stuff, she heard the alarm and decided to fix it herself. She is just like her daddy in that area. I can't begin to express how proud I am of her. Words will never fully explain just how proud of her I am and how much I love her. Today while sitting in primary, Tayla slipped me this note.
